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Understanding learning disability

Martha and David have been caring for their daughter Joan who has Down’s syndrome since her birth 33 years ago. They are now both in their 70s and David has increasingly failing health and Martha finds caring for both Joan and David very stressful and tiring. Joan has a number of health problems and suffers from epilepsy, which is controlled mostly by medication.

Martha has been considering putting Joan into residential care as she is aware that soon that decision may need to be made. David is adamant that Joan will not go into care while he is still alive and Joan wants to stay with her parents. The situation is getting very strained as there have been a number of big arguments, and Martha is showing signs of stress. Joan gets upset every time the subject is mentioned and David is becoming increasingly stubborn and refuses to discuss it. A support worker comes in 3 times a week to help Joan have a bath and has told her manager about the arguments she has overheard.

  1. If you were Joan, how could you try and help the family find a solution to this problem?
  2. What options do the family have for additional support for Joan, and what reassurance could you give the family about residential care if they do decide to go down this path?

It is rare that there is just one way to respond to a scenario or situation, so do not consider that the responses you have to the above scenario will be judged as right or wrong. Share your scenario with a work colleague or friend and ask them to tell you whether they think you have responded appropriately. Ask them to challenge your response if necessary. You do not need to submit this task for assessment unless asked to do so by your assessor.